Being a boudoir photographer with hEDS.
- Amanda Yannekis
- Apr 15
- 2 min read
Alright, besties. Story time!
A lot of you know me as the girl in the studio who is laughing, hyping you up, blasting music, and telling you how hot you look while I’m crawling around on the floor with a camera.
What most people don’t see is what happens after the camera is put down.
So I wanted to share a little about something that has completely changed my life and my “new normal.”
I have Hypermobile Ehlers-Danlos Syndrome, also called hEDS. And no, it’s not just being “extra bendy” or double jointed like people sometimes think.
It’s a connective tissue disorder, which means the collagen in my body doesn’t work the way it should. Collagen is basically the glue that holds your body together. When I fell straddling that tub back in June of 2024, I cracked my support system WIDE OPEN. And now, mine is… let’s just say a little chaotic.
So instead of my joints staying nicely in place like they should, they move too much.
Which means things like:
-Rolling my ankles on flat ground
-Torn ligaments
-Pulled muscles
-Rib slips (yes, that is exactly what it sounds like & it fkn hurts)
-Partial dislocations
-Random joints deciding today is the day they want to misbehave
are just part of my new everyday life.
And if that wasn’t spicy enough, I also deal with POTS and MCAS, which are common companions with EDS.
Basically my nervous system and immune system like to keep things interesting.
So while you might see me smiling, laughing, hyping you up, and acting like your feral dancing best friend in the studio… there’s a really solid chance my body is also screaming in the background.
And I share this not for sympathy.
I share it because I want to be transparent about why my availability is limited these days.
Photography days are very physical for me. I’m on my feet for 8+ hours on session days. I’m squatting, kneeling, twisting, crawling, climbing on furniture, holding weird angles, and staying in those positions for long periods of time so you look incredible in your photos.
I love it with every ounce of my soul.
But my body now requires a significant amount of recovery time in between sessions to avoid injuries that could take me out of the studio for weeks or months.
So if you ever see limited dates or slower scheduling from me, it’s not because I don’t want to work.
It’s because I want to keep doing this for as long as humanly possible.
This work matters to me.
Helping you see yourself differently matters to me.
Watching someone walk out of my studio feeling like a baddie matters to me.
More than anything.
My body might be a little chaotic, but my passion for this work is not.
So thank you for being here.
Thank you for supporting a small business boudoir photographer that is run by a woman with a body that sometimes behaves like a drunk rhinoceros.
And thank you for giving me the space to continue doing the thing that lights my soul on fire.
Your hype girl is still here.
Just with a slightly rebellious connective tissue situation.
And honestly… that kind of fits the brand anyway.




Comments